Doug, Manjo, Adi, Y., Williams, Jacky, Paul, Moli, Kelly, Daniel, Petchey, Roland and Carter, Yvonne (2009) Transition to adult services for children and young people with palliative care needs : a systematic review. Archives of Disease, Vol.96 (No.1). pp. 78-84. doi:10.1136/adc.2009.163931

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Abstract

Objective: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs.
Design: Systematic review
Setting: Child and adult services and interface between healthcare providers.
Patients: Young people aged 13 to 24 years with palliative care conditions in the process of transition.
Main outcome measures: Young people and their families’ experiences of transition, the process of transition between services and its impact on continuity of care, and models of good practice.
Results: 92 studies included. Papers on transition services were of variable quality when applied to palliative care contexts. Most focused on common life threatening and life limiting conditions. No standardised transition programme identified and most guidelines used to develop transition services were not evidence based. Most studies on transition programmes were predominantly condition-specific (e.g. cystic fibrosis, cancer) services. Cystic fibrosis services offered high quality transition with the most robust empirical evaluation. There were differing condition-dependent viewpoints on when transition should occur but agreement on major principles guiding transition
planning and probable barriers. There was evidence of poor continuity between child and adult providers with most originating from within child settings.
Conclusions: Palliative care was not, in itself, a useful concept for locating transition-related evidence. It is not possible to evaluate the merits of the various transition models for palliative care contexts, or their effects on
continuity of care, as there are no long-term outcome data to measure their effectiveness. Use of validated outcome measures would facilitate research and service development.

Item Type:	Journal Article
Subjects:	R Medicine > RA Public aspects of medicine
Divisions:	Faculty of Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing Faculty of Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH):	Palliative treatment -- Great Britain, Continuum of care -- Great Britain
Journal or Publication Title:	Archives of Disease
Publisher:	BMJ Group
ISSN:	0003-9888
Official Date:	30 November 2009
Dates:	Date Event 30 November 2009 Published
Volume:	Vol.96
Number:	No.1
Page Range:	pp. 78-84
DOI:	10.1136/adc.2009.163931
Status:	Peer Reviewed
Access rights to Published version:	Restricted or Subscription Access
Funder:	Association of Children’s Hospices

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