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“We are all there silently coping.” The hidden experiences of parents of adults with Asperger syndrome
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Griffith, Gemma M., Totsika, Vasiliki, Nash, Susie, Jones, Robert S. P. and Hastings, Richard P. (2012) “We are all there silently coping.” The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual and Developmental Disability, Volume 37 (Number 3). pp. 237-247. doi:10.3109/13668250.2012.701729 ISSN 1366-8250.
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Official URL: http://dx.doi.org/10.3109/13668250.2012.701729
Abstract
Background: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature.
Method: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA).
Results: Six themes emerged from the analysis: (a) providers of “hidden” support, (b) role of advocate, (c) social isolation, (d) intrafamilial relationships, (e) support for parents, and (f) future concerns.
Conclusions: The findings of this study offer insight into the experience of parents of adult sons with Asperger syndrome. Implications for future support interventions and research are suggested.
Item Type: | Journal Article | ||||
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||
Journal or Publication Title: | Journal of Intellectual and Developmental Disability | ||||
Publisher: | Informa Healthcare | ||||
ISSN: | 1366-8250 | ||||
Official Date: | September 2012 | ||||
Dates: |
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Volume: | Volume 37 | ||||
Number: | Number 3 | ||||
Page Range: | pp. 237-247 | ||||
DOI: | 10.3109/13668250.2012.701729 | ||||
Status: | Peer Reviewed | ||||
Publication Status: | Published | ||||
Access rights to Published version: | Restricted or Subscription Access |
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