The Library
From personal challenge to technical fix : the risks of depersonalised care
Tools
Reeve, Joanne L., Lynch, Tom, Lloyd-Williams, Mari and Payne, Sheila (2012) From personal challenge to technical fix : the risks of depersonalised care. Health & Social Care in the Community, Volume 20 (Number 2). pp. 145-154. doi:10.1111/j.1365-2524.2011.01026.x ISSN 0966-0410.
Research output not available from this repository.
Request-a-Copy directly from author or use local Library Get it For Me service.
Official URL: http://dx.doi.org/10.1111/j.1365-2524.2011.01026.x
Abstract
Our research focuses on the complexity of needs associated with distress in people with advanced cancer. We have recently completed a large longitudinal survey exploring the interplay between a number of components of distress, including depression, demoralisation, debility and spirituality, amongst a cohort of people living with terminal cancer. Participants were recruited from 25 hospices across the Northwest of England between 2007–2009. A purposive subsample of 27 people was invited to take part in a qualitative interview to explore in greater depth their personal experiences of living with illness and related distress. Holistic-content analysis revealed two emerging themes: ‘personal or personalised care’ and ‘expectations of truth and certainty’. We discuss these themes in the light of Illich’s critique of health care as a ‘technical response to a personal challenge’. We highlight the need for further work to explore the impact of organisation of care on personalised need and suggest looking to the chronic illness self-management literature for help in developing future palliative care approaches.
Item Type: | Journal Article | ||||||||
---|---|---|---|---|---|---|---|---|---|
Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
||||||||
Journal or Publication Title: | Health & Social Care in the Community | ||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||
ISSN: | 0966-0410 | ||||||||
Official Date: | March 2012 | ||||||||
Dates: |
|
||||||||
Volume: | Volume 20 | ||||||||
Number: | Number 2 | ||||||||
Page Range: | pp. 145-154 | ||||||||
DOI: | 10.1111/j.1365-2524.2011.01026.x | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Adapted As: |
Request changes or add full text files to a record
Repository staff actions (login required)
View Item |