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Why do pregnant women participate in research? A patient participation investigation using Q-Methodology
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Meshaka, Riwa, Jeffares, Stephen, Sadrudin, Farah, Huisman, Nicole and Saravanan, Ponnusamy (2017) Why do pregnant women participate in research? A patient participation investigation using Q-Methodology. Health Expectations, 20 (2). pp. 188-197. doi:10.1111/hex.12446 ISSN 1369-6513.
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Official URL: http://dx.doi.org/10.1111/hex.12446
Abstract
Background:
Patient participation in study design is paramount to design studies that are acceptable to patients. Despite an increase in research involving pregnant women, relatively little is known about the motivational factors that govern their decision to be involved in a clinical trial, compared to other patient groups.
Objective:
To better understand the viewpoints of pregnant women who take part in clinical trials.
Method:
We chose to use Q-Methodology, a method of exploring the structure of opinions surrounding a topic. We developed a set of 40 statements that encompassed the reasons why pregnant women might want to take part in research and 30 research participants from the PRiDE study (an observational trial investigating the role of micronutrients in gestational diabetes) were asked to rank them in order of agreement. The finished matrices from each participant were compared and analysed to produce capturing viewpoints.
Results:
About 30 women aged 19–40 involved in the PRiDE study completed the questionnaire. There were two overarching motivators that emerged: a willingness to help medical research and improve our knowledge of medical science, and having a personal connection to the disease, therefore a potential fear of being affected by it. A third, less significant viewpoint, was that of a lack of inconvenience being a motivating factor.
Conclusion and discussion:
Understanding what motivates pregnant women to decide to take part in a research study is valuable and helps researchers maximize their uptake and retention rates when designing a trial involving pregnant women.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services | ||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Biomedical Sciences > Translational & Experimental Medicine > Metabolic and Vascular Health (- until July 2016) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Clinical trials , Pregnant women, Pregnancy -- Research, Medicine, Disease -- Prevention, Q technique | ||||||||
| Journal or Publication Title: | Health Expectations | ||||||||
| Publisher: | Blackwell | ||||||||
| ISSN: | 1369-6513 | ||||||||
| Official Date: | 2 April 2017 | ||||||||
| Dates: |
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| Volume: | 20 | ||||||||
| Number: | 2 | ||||||||
| Page Range: | pp. 188-197 | ||||||||
| DOI: | 10.1111/hex.12446 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Date of first compliant deposit: | 23 June 2016 | ||||||||
| Date of first compliant Open Access: | 23 June 2016 | ||||||||
| Funder: | Medical Research Council (Great Britain) (MRC) | ||||||||
| RIOXX Funder/Project Grant: |
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