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Recommendations to support informal carers of people living with motor neurone disease
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Bergin, Sue and Mockford, Carole (2016) Recommendations to support informal carers of people living with motor neurone disease. British Journal of Community Nursing, 21 (10). pp. 518-524. doi:10.12968/bjcn.2016.21.10.518 ISSN 1462-4753.
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Official URL: http://dx.doi.org/10.12968/bjcn.2016.21.10.518
Abstract
Informal carers are increasingly providing specialist care at home for people living with motor neurone disease. The carers may experience significant deterioration in their quality of life as a result of the physical and psychological burden they undertake. This systematic review seeks to provide evidence-based recommendations to enable healthcare professionals to support carers appropriately to maintain their wellbeing and to continue providing care at home. Inclusion criteria included articles focusing on the experience of informal carers of people with motor neurone disease, particularly when reporting on their perspective of professional services. Twenty-three studies were included and a thematic analysis was undertaken. Four key recommendations were identified: providing support, early access to palliative care, information regarding availability of services, and offering carers training for using specialist equipment. These recommendations offer healthcare professionals practical, cost-effective suggestions to improve existing services.
Item Type: | Journal Article | ||||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | British Journal of Community Nursing | ||||||
Publisher: | Mark Allen Healthcare | ||||||
ISSN: | 1462-4753 | ||||||
Official Date: | October 2016 | ||||||
Dates: |
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Volume: | 21 | ||||||
Number: | 10 | ||||||
Page Range: | pp. 518-524 | ||||||
DOI: | 10.12968/bjcn.2016.21.10.518 | ||||||
Status: | Peer Reviewed | ||||||
Publication Status: | Published | ||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||
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