Bryce, Carol, Ignatowicz, Agnieszka, Huxley, Caroline J., Hamilton, Katherine, Dliwayo, Thandiwe Rebecca, Forjaz, Vera, Sturt, Jackie and Griffiths, Frances (2022) Staying connected : the importance of timely communication for young people living with a long term condition and their clinical teams. Information, Communication & Society, 25 (13). 1865-1882 . doi:10.1080/1369118X.2021.1900319 ISSN 1468-4462.

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Abstract

Timely communications are important in enabling young people with long term conditions to stay engaged with their health and manage their condition successfully. This study considers the role of digital communication in helping young people engage with services and the clinical teams providing their care. Data is drawn from 165 young people and 173 NHS staff across 20 clinical settings in the UK treating a variety of long term conditions. Although not the focus of the main study the intersection of digital technologies and timely communication in keeping young people engaged was apparent. We drew on theories of time to understand how time was conceptualised and used in the digital communications between young people and their clinical teams. Through the lens of time we show that digital communications are valued differently by young people with long term conditions and their clinical teams. In the current policy landscape where there is an emphasis on digital technology understanding the temporalities of different groups will help in the introduction of appropriate digital communications channels. Done well digital communications have the potential to improve young patients’ autonomy but this must be balanced with the needs of clinical teams, particularly loss of control over work patterns.

Item Type:	Journal Article
Subjects:	H Social Sciences > HQ The family. Marriage. Woman R Medicine > RA Public aspects of medicine T Technology > T Technology (General) T Technology > TK Electrical engineering. Electronics Nuclear engineering
Divisions:	Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH):	Young adults -- Health aspects , Technology and youth -- Health aspects , Medical informatics, Telecommunication in medicine, Wireless communication systems in medical care, Medical care -- Technological innovations
Journal or Publication Title:	Information, Communication & Society
Publisher:	Routledge
ISSN:	1468-4462
Official Date:	2022
Dates:	Date Event 2022 Published 16 March 2021 Available 28 February 2021 Accepted
Volume:	25
Number:	13
Page Range:	1865-1882
DOI:	10.1080/1369118X.2021.1900319
Status:	Peer Reviewed
Publication Status:	Published
Reuse Statement (publisher, data, author rights):	“This is an Accepted Manuscript of an article published by Taylor & Francis in Information, Communication & Society on 16/03/2021, available online: http://www.tandfonline.com/10.1080/1369118X.2021.1900319
Access rights to Published version:	Restricted or Subscription Access
Date of first compliant deposit:	23 March 2021
Date of first compliant Open Access:	16 September 2022
RIOXX Funder/Project Grant:	Project/Grant ID RIOXX Funder Name Funder ID 12/209/51 [NIHR] National Institute for Health Research http://dx.doi.org/10.13039/501100000272

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